Part IV: Management of long-term consequences of AFM

to
299 people attended

Join us for part IV of the first virtual five-series symposium: Acute Flaccid Myelitis: What we have learned in order to be prepared. A symposium for health care providers, scientists, parents, and families.


Although parents and families of AFM patients may join any of the symposia, symposia IV and V will specifically focus on families and care of patients with AFM and is geared toward health care providers, pediatricians, neurologists, emergency and intensive care unit providers, therapists, nurses and physical and rehabilitation personnel.

 

Important note: all times listed on this page are set to your local timezone.



The schedule is subject to change

Proudly Supported By

Schedule

· Stage
Hopin Virtual Tour
Roberta Pesce Andrea Salazar
· Stage
Introduction
Carlos A.  Pardo Cristina  Sadowsky
· Stage
A Patient perspective
Sarah Todd Hammer
· Stage
Symptom Management in AFM
Joyce Oleszek
· Stage
Respiratory health in AFM
Michelle Melicosta
· Stage
Activity Based therapy in chronic AFM
Courtney Porter
· Stage
Managing low bone mineral density in AFM
Mahim Jain Cristina  Sadowsky
· Sessions
Panel Discussion led by TBA & Questions
· Stage
CDC AFM Program Updates: Preparedness and Partnerships
Sarah Kidd Alexandra Hess
· Stage
Habilitation: obtaining ongoing services
Janet Dean
· Stage
Promoting Advocacy for AFM
Rebecca Whitney GG deFiebre
· Stage
Coping and adjustment: Keeping kids motivated
Margaret Tunney
· Stage
Advocating for your child in the school system
Lana Harder
· Sessions
Panel Discussion led by TBA & Questions
Alexandra Hess Sarah Kidd Janet Dean Margaret Tunney Cristina  Sadowsky Lana Harder Carlos A.  Pardo

Speakers

Carlos A.  Pardo
Carlos A. Pardo

Johns Hopkins School of Medicine

Rebecca Whitney
Rebecca Whitney

Siegel Rare Neuroimmune Association (SRNA)

Mahim Jain
Mahim Jain

Kennedy Krieger Institute

Lana Harder
Lana Harder

UT Southwestern

GG deFiebre
GG deFiebre

Siegel Rare Neuroimmune Association (SRNA)

Cristina  Sadowsky
Cristina Sadowsky

Kennedy Krieger Institute

Margaret Tunney
Margaret Tunney

Kennedy Krieger Institute

Janet Dean
Janet Dean

Kennedy Krieger Institute

Courtney Porter
Courtney Porter

Kennedy Krieger Institute

Michelle Melicosta
Michelle Melicosta

Kennedy Krieger Institute

Joyce Oleszek
Joyce Oleszek

Children’s Hospital Colorado

Sarah Todd Hammer
Sarah Todd Hammer

Author, Dancer, Activist.

Roberta Pesce
Roberta Pesce

Siegel Rare Neuroimmune Association (SRNA)

Andrea Salazar
Andrea Salazar

Johns Hopkins University School of Medicine

Sarah Kidd
Sarah Kidd

Center for Disease Control and Prevention

Alexandra Hess
Alexandra Hess

Center for Disease Control and Prevention

The event is over

Hosted by

SRNA | connect. care. cure. ™

The nonprofit advocating for people with rare neuroimmune disorders. Accelerating research for a cure.⁣⁣ ⁣⁣ ADEM | AFM | MOGAD | NMOSD | ON | TM⁣

Booths

Resource Center

Resource Center

Access the resources that are being shared during this symposium

Hopin Help Desk

Hopin Help Desk

Need Help with using the platform? Here's the learning center

SRNA Booth

SRNA Booth

Join the SRNA Community!

Kennedy Krieger Institute

Kennedy Krieger Institute

Our program is one of the first in the world focused on rehabilitation and restoration for children with paralysis.

Johns Hopkins Medicine

Johns Hopkins Medicine

Extraordinary people and extraordinary moments are part of the tapestry here at Johns Hopkins Medicine.